Registration & Consent
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Register a Professional Account

ICPR and Clinical Research

One of the goals of the ICPR is to enable researchers from around the world to work together to speed research progress. The ICPR connects all those interested in accelerating cholangiocarcinoma research – affected individuals, families and the medical and scientific communities -- with a resource that has never before been available in one place.

ICPR Data and Curation

The ICPR Coordinator reviews the self-reported patient profiles for accuracy and completion. Curation is an ongoing and continuous process however only completed participant profiles are included in the searches of registry data.

By registering for the CCF researcher portal, you agree to the following terms:

  • Agree that the ability to access and search de-identified information in Cholangiocarcinoma researcher portal's registry database is for your internal research or business use only.
  • Agree that all CCF generated content available on the researcher portal is owned by CCF and all Patient Data is owned by the registry participant.
  • You agree not to sell, publish, present or transfer the unaltered Patient Data to any third party or for any commercial purpose.
  • You agree to seek the written permission of CCF prior to any publication or presentation of secondary analyses of the Patient Data.
  • You agree to clearly attribute CCF in any research papers or other publications which make use of any Patient Data.

If you have questions or concerns about the Researcher Portal or your participation, please send an email to This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Registration

Complete the form below to request access to the ICPR Researcher Portal. Your registration will be reviewed within the next 7-10 business days and once approved, you will receive an email notification.

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